When I first heard the term informal caregiver, I paused. It wasnโt in a sibling space.It wasnโt in a family systems conversation.It wasnโt even in an OT lecture. And when the role was described โ spouses, aging parents, adult children โ Siblings werenโt mentioned. I remember thinking: Wait. What about us? The Invisible Role World… Continue reading Informal Caregiving: The Role I Didnโt Know I Had
Tag: caregiver
Starting the Sibling Conversation: Because Silence Isnโt Neutral
Sibling relationships are complicatedโeven more so when disability, chronic illness, or mental health is part of the family story. Many adult siblings grow up learning how to โbe fine,โ stay quiet, or take on roles without ever being asked how theyโre actually doing. The problem? Silence doesnโt mean everything is okay.It usually means the conversation… Continue reading Starting the Sibling Conversation: Because Silence Isnโt Neutral
Future Planning: What Siblings Want You to Know
When you grow up as the sibling of a child with a disability, you learn early that the future isnโt something you can take for granted. While other kids daydream about college, careers, and where they might want to live someday, many of us are thinking about something very different: What will happen to my… Continue reading Future Planning: What Siblings Want You to Know
Health and social care in England
Photo by John Nail on Pexels.com Housing Thereโs a few housing options but the most common ones for people with severe learning disabilities are to rent a home from the local authority, share with a few others in supported living or live in a larger care home. Your sibling might live with you/your parent โ… Continue reading Health and social care in England
AAIDD Special Feature
Effective leadership in IDD services requires a holistic approach that values siblings' roles alongside therapists. By incorporating siblings' insights in care planning and supporting therapeutic collaboration, leaders can enhance family dynamics and caregiving preparation. This inclusive strategy fosters emotional well-being for both siblings and individuals with IDD, creating a supportive environment.

