Thanks for joining me! Good company in a journey makes the way seem shorter. — Izaak Walton Special Needs Sibling.... This is an actual thing. I knew there had to be others but I had no idea where or how to find them. I was actually going to start my own type of support group.… Continue reading The Journey Begins
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IDD & Trauma
The statics for abuse with someone with a disability in the US is around 90% according the Center for Disability Rights. The link to their blog post is here. These numbers do not surprise me anymore especially with my own experience with my brother, working with individuals post trauma (go back to the blog post… Continue reading IDD & Trauma
Why So Many Organizations & Nothing Happening?
There are so many disability advocacy organizations and little is happening. There is so much overlap and duplication of services, it becomes confusing who is advocating for what. ARC- federal, state, and local Consortium of Constituents with Disabilities American association of people with disabilities All the diagnosis specific organizations- Autism, Down Syndrome, Cerebral Palsy, Rare… Continue reading Why So Many Organizations & Nothing Happening?
Healthcare Concerns
I am not sure that any where in the world has healthcare figured out. As for the US, the capitalistic system is failing most of us. Even more so if you have a government insurance policy. I turn people away daily because they can't afford to privately pay for services and make too much money… Continue reading Healthcare Concerns
IDD and Basic Healthcare
This will be short a sweet. Many women my age are going through peri menopause if not full menopause. The symptoms are nuts and no one talks about it. Brain fog, weight gain, horrible and irregular periods, heart palpations, to dry skin. Many woman if not most woman are dismissed by their primary care physicians… Continue reading IDD and Basic Healthcare
Abuse in Florida
I have been in Manatee county for 10 years and nothing has changed. The latest abuse case hits too close to home. Teacher and teaching assistant decided it was ok to tie down an autistic nonverbal child. The former superintendent was well aware of the abuse happening before this incident and personally emailed her on… Continue reading Abuse in Florida