Blog

Sibling

The Journey Begins

Thanks for joining me! Good company in a journey makes the way seem shorter. — Izaak Walton Special Needs Sibling.... This is an actual thing. I knew there had to be others but I had no idea where or how to find them. I was actually going to start my own type of support group.… Continue reading The Journey Begins

a man covering his face
Sibling

IDD & Trauma

The statics for abuse with someone with a disability in the US is around 90% according the Center for Disability Rights. The link to their blog post is here. These numbers do not surprise me anymore especially with my own experience with my brother, working with individuals post trauma (go back to the blog post… Continue reading IDD & Trauma

people gathered watching a panda mascot
Sibling

Why So Many Organizations & Nothing Happening?

There are so many disability advocacy organizations and little is happening. There is so much overlap and duplication of services, it becomes confusing who is advocating for what. ARC- federal, state, and local Consortium of Constituents with Disabilities American association of people with disabilities All the diagnosis specific organizations- Autism, Down Syndrome, Cerebral Palsy, Rare… Continue reading Why So Many Organizations & Nothing Happening?

women in white dress shirt
Sibling

IDD and Basic Healthcare

This will be short a sweet. Many women my age are going through peri menopause if not full menopause. The symptoms are nuts and no one talks about it. Brain fog, weight gain, horrible and irregular periods, heart palpations, to dry skin. Many woman if not most woman are dismissed by their primary care physicians… Continue reading IDD and Basic Healthcare