Denby Williams Looking at the prevalence rate of epilepsy among autistic individuals, approximately 25-30% of children with Autism Spectrum Disorder (ASD) will develop epilepsy in their lifetime. This is compared to the much lower prevalence rate of 1% among the general U.S. population. Much of the development occurs during puberty due to evolving hormonal shifts… Continue reading Why Epilepsy Awareness Matters in Autism Discussions
Tag: special need sibling
Meet Shawn: The Young Sib Who Made a Documentary โ And Why It Matters
Sometimes I stop and think about why I believe so deeply in Sibshops. And then something lands in my inbox that reminds me all over again. A mom recently shared a video with me โ made by her son, Shawn Torres-Viteri, a junior student who created a documentary for National History Day titled "The Amy… Continue reading Meet Shawn: The Young Sib Who Made a Documentary โ And Why It Matters
Accepting Help
Traveling alone in Thailand, I noticed something uncomfortable. The guides carried things.They navigated.They made sure I crossed busy streets safely.Hotel staff walked me out at night.They checked transportation.They made sure I arrived back safely. And my first instinct? โIโve got it.โ Not because I didnโt appreciate them.But because receiving help feltโฆ foreign. As siblings โ… Continue reading Accepting Help
Starting the Sibling Conversation: Because Silence Isnโt Neutral
Sibling relationships are complicatedโeven more so when disability, chronic illness, or mental health is part of the family story. Many adult siblings grow up learning how to โbe fine,โ stay quiet, or take on roles without ever being asked how theyโre actually doing. The problem? Silence doesnโt mean everything is okay.It usually means the conversation… Continue reading Starting the Sibling Conversation: Because Silence Isnโt Neutral
Understanding Sibshops: Empowering Siblings of Children with Disabilities
If youโre raising a child with a disability or complex medical needs, you already know the impact it has on the whole family. What often gets less attentionโthrough no oneโs faultโis the experience of the siblings. They love fiercely, adapt constantly, and learn to be flexible in ways most adults never have to. And yet,… Continue reading Understanding Sibshops: Empowering Siblings of Children with Disabilities

