There are so many disability advocacy organizations and little is happening. There is so much overlap and duplication of services, it becomes confusing who is advocating for what. ARC- federal, state, and local Consortium of Constituents with Disabilities American association of people with disabilities All the diagnosis specific organizations- Autism, Down Syndrome, Cerebral Palsy, Rare… Continue reading Why So Many Organizations & Nothing Happening?
Blog
Healthcare Concerns
I am not sure that any where in the world has healthcare figured out. As for the US, the capitalistic system is failing most of us. Even more so if you have a government insurance policy. I turn people away daily because they can't afford to privately pay for services and make too much money… Continue reading Healthcare Concerns
IDD and Basic Healthcare
This will be short a sweet. Many women my age are going through peri menopause if not full menopause. The symptoms are nuts and no one talks about it. Brain fog, weight gain, horrible and irregular periods, heart palpations, to dry skin. Many woman if not most woman are dismissed by their primary care physicians… Continue reading IDD and Basic Healthcare
Abuse in Florida
I have been in Manatee county for 10 years and nothing has changed. The latest abuse case hits too close to home. Teacher and teaching assistant decided it was ok to tie down an autistic nonverbal child. The former superintendent was well aware of the abuse happening before this incident and personally emailed her on… Continue reading Abuse in Florida
Burnout
The Centers for Disease Control and The World health Organization both have statements regarding burnout. Here is the official statement from the CDC . "Burnout is an “occupational phenomenon”, rather than a medical condition or actual disease (according to the International Classification of Diseases, 11th revision or ICD-11). -Although burnout is not an official medical condition,… Continue reading Burnout
